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Shoutout to Slyde Handboards for Their Generosity!

Blog re-posted from the Slyde Handboard Website, October 22 2016

SLYDE AUTOGRAPHED MARK CUNNINGHAM BOARD RAISES $280 FOR SKIN CANCER AWARENESS

SLYDE HANDBOARDS BELIEVES IN DOING GREAT THINGS, AND GIVING BACK IN BIG WAYS.

Carlos our team rider from Canada recently completed a 365 day watermen challenge. In which he wave rode every day for 365 day without fail.

The challenge in effort to raise awareness and education for skin cancer.  The most common type of cancer, and one dear to Carlos’s heart as his father Marcel passed away from the disease.

Slyde alongside Raw Elements USA honored Carlos’s epic effort and his father by auctioning off an autographed Mark Cunningham Handboard & natural sunscreen package, with all proceeds going to Save Your Skin Foundation of Canada.

The auction saw a ton of action with the winning bid of $280 going to South African native Clint Buckham.

Thank you Clint for your generous donation, and everyone who participated.

REMEMBER TO SAVE YOUR SKIN AND  THOSE AROUND YOU, APPLY YOUR SUNSCREEN AND STAY PROTECTED BEACH LOVING FRIENDS.

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Why Save Your Skin Foundation?

Written by Natalie Richardson

 

This has been the most exciting few weeks I have had since I was diagnosed with metastatic melanoma. I feel an optimism unusual for my character since finding a potentially deadly mole on my hip in April 2014, when my world came crashing down with fear and worry. After surgeries and immunotherapy treatments, my body and my mind were left confused and full of dread.

I remember the exact moment I embarked on the path that would eventually lead me back into a productive life, with hope and determination as my new leads. Though I did not know it at the time, my discovery of Save Your Skin Foundation was a saving grace.

Depressed by internet searches about this disease, I relied solely on the word of my oncologists to guide decision-making in my care. Thankfully, I was fortunate to have an excellent medical team with a finger on the pulse of current treatments and clinical trials. My family and I did seek second – and third – opinions at Centres in Ontario, and I felt as secure as I could possibly be, choosing the course of my treatments with their guidance, via clinical trial.

By randomized-draw chance I received the treatment that I may always credit with saving my life, and I am grateful for that. But to this day I ponder what may have happened had I been on the other side of that trial draw. It bothers me, keeps that fear lingering. Not only fear for myself, but for others who may face the same risks that I have, and may not receive the same care. What if someday, my children were to face this diagnosis and did not have access to treatment?

In researching this question, I came upon a website with a warm first impression and a vastly informative set of links and options. I clicked and read and explored, not once feeling intimidated. I had to know more… the moment was right, and I had stumbled upon the right place: Save Your Skin Foundation.

I called the number, immediately reaching Kathy Barnard, melanoma Survivor, and Founder of this Foundation. Her distinctive voice put me at ease, and we talked about my situation and how fearful and alone I felt. She told me of her experiences with treatments, and I shared mine. She knew my medical oncologist as well as many others across the country, and she told me about new therapies on their way toward fighting melanoma skin cancer.

She determinedly said “You’re going to be okay.” And I believed her. I felt she might be right. She had run the gamut and come out the other side, and she understood what I was talking about.

My loving friends and family had been telling me that I would be all right, but when Kathy said it, it was different. My loved ones wanted it to be all right, but Kathy knew that there was actually a possibility that it WOULD be.

I have since learned that it is this determination and experience that has led Kathy and her family to build an educated team, in the form of a Foundation, to help others in this way. Many patients are touched by the support of this group; many lives are saved.

Emotionally and physically, Save Your Skin Foundation is there for any and every Canadian touched by skin cancer, whether it be a pre-cancerous lesion or a diagnosis of advanced metastasis. They share their experience, they research every medical detail, they work every day to help those in need of support in a skin cancer battle.

Since that day I first spoke with Kathy, I felt safe. I was comfortable looking around her website, watching the webinars and reading the notes carefully assembled. It remains a safe and reliable source of information about every stage of skin cancer.

Having gravitated to it for a year and a half, I have been dedicated to helping Save Your Skin save MY skin! And that of others. We network, collaborate, and identify with each other in a way that perhaps only those in our shoes can understand. It is a community of support available to those who need it.

It is at their invitation that I have had the inspiration to share my story so openly, encouraged in campaigns such as #NotJustSkinCancer and the Melanoma Through My Lens Reflection
Project. They have been a huge part of my rehabilitation, right down to the gentle reminders that I CAN still do the things I feared I had lost after diagnosis.

I feel great responsibility in being able to represent Save Your Skin in these kinds of projects, and at the same time I feel equal duty to represent fellow melanoma warriors, patients, families, and friends travelling their own skin cancer journey.

It’s the least I can do, in return for this gift of support and hope that I have been given. Thank you, Save Your Skin Foundation.

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Tea with a Titan, Episode 21: Kathy Barnard, Melanoma Survivor and Advocate,

Melanoma spreads like wildfire, and Kathy’s was no different. It spread to her lungs, her kidney, her liver, her adrenal glands, her abdomen, and her bones. She was given three to six months to live. That was 11 years ago. Today, she is cancer free and the founder of the much-respected Save Your Skin Foundation.

Kathy’s story is a reminder too that we need to take it upon ourselves to not just float in the dreamy space of “oh really – it’s nothing.” If you feel it’s something, don’t stop until you know what it is.  To view the episode, please click HERE

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A Thank You from Melanoma Caregiver

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Written by Connie, wife and caregiver to her husband and melanoma patient, Ted.

A year ago my husband was diagnosed with Stage 4 melanoma with metastases to the lungs.  Our world suddenly and drastically changed where fear and worry took over our days.  In a whirlwind of appointments and consultations it became apparent that there would be numerous tests, scans, followup appointments and overnight trips that would take us to a specialized oncologist.  Of course there was the chemotherapy as well.  Once things became somewhat routine like, if I may be brave to say so, of just becoming a new norm the other part of life began to take over.  Suddenly, I became the main income earner for my family along with caregiver alongside being a mother.  How were we going to get through this?  Or, how was I going to get use to looking at my husband daily crying inside with the thought of losing him to this dreadful disease?  Living in a very rural and remote area I had no options for caregiver support, I had no family support and so I stood alone in my rollercoaster emotions trying to be strong and positive for my husband.  Then one day I came across the Save Your Skin Foundation and met 2 incredible people, Karran Finlay and Kathy Barnard.  These 2 people reached out to me from a distance, listened to me and in doing so I began to feel hope and renewed strength.  I suddenly felt that maybe I wasn’t alone and I continue now to feel this way as I know in my heart that they are there and will continue to be so as the journey of fighting cancer continues with my husband.

Right now there is not a lot I can do to give back to this incredible Foundation and these 2 beautiful, compassionate women, but I can write this to say THANK YOU!   To say that without them, I as a caregiver would be totally lost and in despair.  To say THANK YOU for not ignoring me, for listening everytime I email or phone, for never being too busy to open your hearts!  THANK YOU!

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Biosim•Exchange: A Resource for Staying Updated about Biosimilars!

While not yet a frequently heard term in melanoma treatment, biologic medications are making their way from arthritis to other chronic illnesses, including cancers. Biologics are medications that are created from living organisms, such as bacteria or yeast, as opposed to chemicals. The second iterations of these products are biosimilars; the closest imitations to the first products possible, though the chemical compositions of the first cannot be exactly duplicated.

Like other medications, biosimilars in Canada require chemical equivalence trials before being put on the market. These trials include a comparison of the mechanism of action, rate of administration, dosage form, and strength of the original medication and the biosimilar. This is to ensure that there will be no difference in the safety or efficacy between the two medications.

As biosimilars are most often developed for the treatment of arthritis, the Arthritis Consumer Experts (ACE) are leaders in the biosimilar field. Since 2009, the ACE has been working with advocacy groups, patients, healthcare, and government stakeholders to support the development of a medication approval and reimbursement access regime. Recently, ACE launched the Biosim•Exchange website. Biosim•Exchange is an information hub for consumers to learn about biosimilars, stay up-to-date on biosimilar news, and background analysis of biosimilars currently on the market. Having this information helps patients participate in forming their treatment plan, and encourages collaboration between patients and their medical team.

Biosimilars are a rapidly developing option for the treatment of chronic illnesses. To stay on top of advancements in this field, check out Biosim•Exchange!

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