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Hot Lucy Fundraiser – A huge THANK YOU to our attendees and sponsors!

The Benefit Concert at The Media Club in Vancouver with Hot Lucy and Guests Apollo’s Crush was a big success! Thank you to all who joined us for this fun night and for supporting the Save Your Skin Foundation! 

Also a big THANK YOU to all the sponsors who generously supported us and donated great silent auction items to help us raise funds for Skin Cancer Patients in Canada. We deeply appreciate your generosity.

We’d like to remind everyone that all proceeds went to the Save Your Skin Foundation to keep supporting those touched by Skin Cancer and to keep providing awareness.

Our sponsors:

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And thank you to The Media Club for hosting this charity event!

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Hike for Hope – June 6, 2015

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Hike for Hope – hope for a cure; hope for survivorship.

Hike to celebrate hope for advanced melanoma survivorship, where there was little hope only 5 years ago.

Join us on June 6th to raise funds for awareness and support for melanoma and other skin cancers.

This year, we are raising $5,000 to change the lives of those impacted by advanced melanoma and other skin cancers.

Hike for Hope is part of a larger initiative that Save Your Skin launched in February of 2015 called ‘I’m Living Proof’ – celebrating melanoma survivorship.

One of the new words in the melanoma vocabulary is survivorship. It’s a word that only ten years ago was hardly achievable but today is used more and more with a disease that is often considered terminal. When the Save Your Skin Foundation was created in 2006 the mission was simple: to provide a source of information and hope for patients. Today that mission has been expanded and a new chapter has been added – survivorship – through an initiative called I’m Living Proof.

As part of this program, SYSF has launched the first annual ‘Hike for Hope’ – a journey through nature with melanoma and skin cancer supporters from across Canada who are coming together to make a difference.

Please join us during National Sun Awareness Week on Saturday, June 6th at 4p.m. PT (Pacific Time) to Hike for Hope. This year, the hike will take place at Demonstration Forest in North Vancouver: http://www.trailpeak.com/trail-Seymour-Demonstration-Forest-Multi-use-Trail-near-North-Vancouver-BC-4800.

Not able to make it for the hike? Follow the steps below for other ways you can contribute!

To find out more, visit: https://chimp.net/campaigns/hike-for-hope

 

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A Reminder About Sun Safety in the Form of SYSF Board Member, Christian Mosley

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May is Melanoma Awareness Month, in the spirit of which Save Your Skin would like to lend a reminder about sun safety in the form of Christian Mosley, a member of our board. Christian is not only the Head of Client Success at Chimp, a company that facilitates fundraising for charities, he’s also a Reservist in the navy and an outdoorsy thirty-four year old. Christian’s time in the sun has come back to haunt him recently, with the presence of stage 1B melanoma in a mole on the top of his head. Christian had been aware of this mole for a while; a barber pointed it out to him when he was joining the military twelve years ago. Forgotten about, this same mole reappeared in the summer of 2014, when it began to bleed on a sailing trip. Christian then saw a Doctor and a Dermatologist, both of whom identified the mole as melanoma. Two surgeries later, the mole was gone and Christian was left with what he described as “a row of staples down the back of my head”. 

Christian told me that his encounter with melanoma was an “emotional experience”, and explained how the surgeries caused him to cancel his summer plans, and interrupted his normal activities; even smiling would “put pressure on, and stretch, the incision”. While these outdoor activities can be pointed to as a contributing factor of Christian’s melanoma, he claims that he always practiced sun safety. He was conscious of skin cancer because of the history of melanoma in his family, which made him genetically prone to the disease. “I would say that most of the time I was proactive,” Christian told me, “but I still definitely had some bad burns, and I didn’t always wear hats. I think that contributed to it.” Melanoma can develop in many ways, which can slip past people who are aware of sun safety. One common error is the assumption that a good track record of wearing sunscreen makes the occasional tan, or burn, forgivable; an assumption that Christian hearkened to by asserting that there’s no such thing as a “base tan”, or a “good burn”. Christian also cites not always wearing hats as a contributor to his own melanoma, telling me “I think that I neglected the top of my head because it’s not an area that you’re conscious of when you’re considering sun protection”. The top of the head, along with the ears, neck, back of the hands, and tops of the feet, are the most commonly forgotten areas during sunscreen application. The top of the head is especially at risk without the protection of a hat, and, as Christian noted: “you don’t think to put sunscreen in your hair”. 

Christian’s story demonstrates how easy it is for certain aspects of sun safety to fall between the cracks, even when you think you’re protecting yourself. “When you’re a male in your twenties, you think you’re invincible”, he told me, “I thought I was doing everything right.” In addition to sun safety, it is important to consider the history of skin cancer in your family, and, if you have moles, to get them checked frequently. Of skin cancer awareness, Christian thinks that, “people need to be more proactive and less reactive”, a shift that is demonstrated by his attitude towards moles. Christian told me that, before his diagnosis, “I did have the moles checked out, then I forgot about it for a while. But they can change.” Having learned this fact the hard way, he now visits his dermatologist frequently and has had other moles removed. Looking for a “wider, collective mind shift” in regards to sun safety, Christian meditates on the military attitude towards sun burns as a guide: “if you get a sunburn in the navy, it’s a chargeable offence. It’s considered a self inflicted wound, and it interferes with your duty”, an anecdote that demonstrates the preventability of sunburns, and their potential consequences. 

Christian is not just making a call for sun safety, but is putting this mind shift into action. After being diagnosed with melanoma, Christian went to the internet (“a horrible place to go”) for guidance. Fortunately, google brought him to Save Your Skin, and put him in contact with Kathy. “It really felt like I was talking to someone who was not only super informed, but also cared,” he told me, “She [Kathy] was really able to give me perspective that I was unable to get from the medical community.” Christian joined the Save Your Skin Board in September 2014, and has been working on the solidification, internally and externally, of what he calls the ‘core values’ of the foundation. When I asked him what these core values are, Christian told me that he views Save Your Skin as a “patient-centric” organization. “It’s okay to do a lot of stuff,” he said, “but what is really important is that you have a primary focus. And with Save Your Skin that focus is patient-centric. Patients first. That is how Save Your Skin differentiates itself in the charitable marketplace.”

While it is fortunate that people who want to put “patients first” like Christian exist, it is unfortunate that they often have to encounter a disease before they learn from it, especially one that is as preventable as melanoma can often be. Hopefully this Melanoma Awareness Month can generate the “collective mind shift” that Christian hopes for, with a better consciousness of sun safety and other preventability measures against skin cancer.

Written by Taylor

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Hot Lucy is Rockin’ for the Cause

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Terry Fay, Investment Advisor, is also a rockstar. The band he drums for, Hot Lucy, played their first benefit for Save Your Skin at The Yale Hotel in 2009, and they have been rockin’ for the cause every year since. Terry met Kathy’s sister Rose in 2006 through work, and proposed a musical benefit as a low-risk way for Save Your Skin to raise money when it was a young charity. Hot Lucy has played many charity gigs, and are used to the risks that come with them. When we spoke, Terry explained: “the thing about benefits is that you learn a bit about what they’re doing and you start to get scared about getting any of those diseases. Melanoma scares the life out of me now!” Save Your Skin is a favourite charity to support for Hot Lucy because, instead of being one of many bands, Terry tells me that “Save Your Skin has evolved from having a number of acts to basically just Hot Lucy”. Evidently, Save Your Skin is a good organization to be associated with. “Save Your Skin is an amazing charitable organization that’s helping a lot of fantastic people,” he said, “We’re proud to be a part of it, and help in any way we can.” Hot Lucy is helping the foundation this year by playing a fundraiser on May 21st at the Media Club with “dance pop” band Apollo’s Crush. Tickets are $15, and include a free drink. The event also boasts a silent auction, a 50/50 draw, and a guaranteed good time. What kind of music will Hot Lucy be playing? Terry describes it as “an alternative rock band with a mix of some pop classics. A little bit high energy, aggressive, and somewhat in-your-face. Hopefully when we’re finished the night the adrenaline is flowing, and everybody is feeling like they can take on the world.” A band that generates such feelings is appropriate for a foundation that is, as Terry says, “based on the strength of Kathy.” If you want to be a part of the rush, come check out Hot Lucy at the Media Club on Thursday, May 21st!

Written by Taylor

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The hard questions – how I explain a really complicated cancer and treatment to my friends and family

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I’ve just been diagnosed with stage 3 melanoma and begin frantically searching the internet.  Basal cell carcinoma, squamous cell carcinoma, melanoma – all with very different outcomes, under the heading skin cancer.  I finally stumble upon the 10-year survival statistic calculator.  Plug in my age, the site of my melanoma, how thick it is, ulceration and mitotic rate, any spread to lymph nodes or distant sites in the body and I get the magic percentage – the odds I will still be alive 10 years from now.

I barely understand.  This is heavy.  How do I tell people?  The questions start flying.

Why did you get this?

It was probably a mix of sun exposure, using tanning beds and genetics.  There is no such thing as a base tan.  Stay out of the sun and use sunscreen.  

What did your mole look like?

Mine was tan colored, but began to grow.  If there is anything new, growing, bleeding or itchy you should have it looked at and potentially removed.  The classic teaching is asymmetric, irregular borders, multicolored or black, diameter bigger than a pencil eraser, or evolving (A, B, C, D, E).  

You’ve had surgery to remove the skin cancer, it is gone right?  

Well, the parts we can see are gone.  The spot is removed, and 2cm around it to make sure there is no microscopic remnants.  I’ve had lymph nodes removed and there is nothing they can see on the CT scans.  So, for now, I’m “cured”.  I use this word with caution.  The chance that my melanoma will come back is high, 30-60%, so I am optimistic that I will be ok, but I am guarded. 

But it’s just skin cancer?

It depends what kind you have – melanoma is the most aggressive of the skin cancers.  If caught when it is thin in the early stages – removing the spot can be curative.  If it is thick or spread to other sites in the body it is more difficult to treat.

But I have a friend who had (insert cancer here) and they’re ok.

Melanoma is very different from other cancers, like lymphoma or breast cancers, in how we treat it.  It doesn’t respond well, or at all, to chemotherapy and radiation like other types of cancers.  The best treatment is using the body’s own immune system to recognize the melanoma and “attack” it.  In the past few years there have been several new drugs that have come out that are working better than any other treatments we’ve had before, especially in stage 4 melanoma, but they are very expensive for the provinces to pay for.

What kind of treatment is available for stage 3 melanoma that has been surgically removed (resected)?

Currently, some of the options in Canada are drug trials or interferon (which is a controversial treatment).  I opted for interferon.

But you don’t look sick?

I’m on a biological therapy, which is not traditional chemotherapy, and the side effects are slightly different.  I still feel very sick, and need to do the treatment for a year.

Is the treatment working?

Maybe.  We won’t know unless the cancer comes back, or doesn’t.  It is called adjuvant therapy.  As far as the CT scans can see, I was cured from the cancer after my surgery.  But the chance that it can come back (because of microscopic deposits we can’t see) is high.  I hope the interferon does work, but I am cautiously optimistic.

You’ll be ok, right?

Yes.  (Is my usual answer to keep the mood light, what I really should say is):

Maybe.  I was told I have a 50% chance of living 5 more years.  

How do you tell that to your family and friends when you are only in your mid-twenties?  I take all the statistics with a skeptical eye, many of those people included in those statistics are very old, or have other diseases.  Up until a few years ago there were not any good treatments for melanoma, I expect these numbers to change for the better because of our new treatments.  Odds and statistics won’t tell you what your own personal outcome will be – no one can predict that.

One of the most challenging parts of explaining this cancer is that the answer is often “no-one knows for sure”, so I try my best to field questions without making things too complicated or getting into the nitty gritty.  Melanoma is serious and scary, but also at a point where there are lots of new exciting treatments, and with that comes hope.

As a closing note I would like to extend a big thank you to Kathy and the SYSF team for their education and support throughout my treatment.

Sam

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